We will update information we hear on FreeStyle Libre prescribing around Scotland
Many people have had ongoing funding either through the clinic or special funding requests. We are trying to report on people now being prescribed the FreeStyle Libre since it became available on the drug tariff with factual information unlike the rumours in social media. It is early days, and everything takes time, for this reason, we don’t expect things to become clear until closer to the end of 2017. The good news is no board has given an outright no yet, unlike some CCG’s in England. If you have any information to add including pharmacy-friendly costs, please contact us, Tweet us, or join us on Facebook.
Boards around Scotland will likely base their local guidance on recommendation of the guidance by the Scottish Diabetes Group. See this here.
For a pharmacy to dispense the Libre sensors, whether privately or on prescription, they must first register here:
Once registered they can order sensors which Abbott will deliver in around 24Hrs, so faster than ordering directly from Abbott. As the sensors are not yet on the system, if your GP is writing one, it will need to be handwritten for now.
Ayrshire and Arran
November 2017, Prescribing guidance is going through the national process for inclusion in local formulary. Draft guidance is sent to joint formulary for review before a decision will be made. No patients have yet been prescribed the Libre due to the inclusion on the drug tariff.
17th Nov – Borders peads prescribing if they feel it’s necessary.
Dumfries and Galloway
No decision made as yet
FreeStyle Libre was added to the Scottish Drug Tariff on 1st November 2017 with a qualification note stating that the product should not be initiated without reference to an appropriate diabetes specialist and in accordance with local guidance.
A subgroup of the Scottish Diabetes Group has developed guidance to help NHS Boards identify people who should be considered for NHS funded Flash Glucose Monitoring in Scotland. Currently, this Scottish clinical guidance states that Flash Glucose Monitoring should be considered in people who:
- Use intensive insulin therapy (multiple daily injections or continuous subcutaneous insulin infusion); and
- Agree to attend a locally provided Flash Glucose Monitoring education session; and
- Agree to scan glucose levels no less than six times per day; and
- Agree to share glucose data with their diabetes clinic; and
- Have attended a recognised diabetes structured education programme and/ or the clinical team are satisfied that the person (or carer) has required knowledge/ skills to self-manage diabetes.
This Scottish clinical guidance also states that “Continuing prescription for long-term use of FreeStyle Libre would be contingent upon evidence of compliance with the above conditions and that on-going use of the Freestyle Libre is demonstrably improving an individual’s diabetes care.”
NHS Forth Valley will consider the local position regarding FreeStyle Libre in due course, after formally reviewing guidance from NHS National Services Scotland, the full clinical guidance from the Scottish Diabetes Group and any other local factors.
In the meantime, we have advised local GPs that:
- The Forth Valley Diabetes Network will review the product to determine the most appropriate place in therapy and which patients this product will be suitable for, taking into account clinical guidance from the Scottish Diabetes Group.
- The Scottish Diabetes Group guidance indicates that Flash Glucose Monitoring should be considered in people who use intensive insulin therapy (multiple daily injections or continuous subcutaneous insulin infusion).
- The recommendation to commence FreeStyle Libre should originate from the local diabetes specialist team.
- Prescribing arrangements will be confirmed once local advice has been issued.
- In the meantime, patients receiving intensive insulin therapy should contact the specialist diabetes team at Forth Valley Royal Hospital if they have any further questions regarding Freestyle Libre.
The first 10 patients reported to have NHS funded prescriptions in Scotland to us (10th November 2017)
‘The pump clinic at NHS Forth Valley gave secondary care approval for Libre sensors. Passed to my GP yesterday and the prescription was written this morning! ‘
If you enquire Forth Valley are adding patients who meet the guidelines to a waiting list and advising someone will be in touch.
Buying sensors yourself?
More good news for those of you unable to get the Libre on prescription if you live near Larbert. The Larbert Pharmacy at 94, Main St, Larbert, FK5 3AS Telephone: 01324 557596, will order and sell you a sensor. They have just increased their price though due to demand. It should be there in approx. 24 hours.
MCN in process of building a business case to be sent for approval.
Message from Grampian Type 1 Diabetes Community Group
We have been contacted by the Grampian Diabetes Clinic to ask for patient testimonials on the use of Freestyle Libre. If you are interested in contributing your testimonial to the clinic, please contact email@example.com and we will send you full details. Please do not send us your testimonial, we’ll tell you where to send it.
*** Deadline 4th Dec 2017 for testimonials.
Greater Glasgow and Clyde
Draft guidelines/criteria from the MCN are being sent to the Health board for approval. Prescribing will be available to those who meet the guidelines and GG&C are keen to keep prescribing consistent for anyone meeting criteria.
A patient has said they are now funded (This is unverified)
15th Nov – More reports of funded patients – However full guidance still not approved. Prescribed on an individual and case-by-case basis.
Buying sensors yourself?
Lloyds Pharmacy have been selling at various prices from £42-£57.95 I am still waiting on cost confirmation from Lloyds
Boots on Great Western Road (Nr Byres Rd) are charging a £20 handling fee and want a private prescription.
Hand Pharmacy Whiteinch will order for you, cost TBC.
1239, Dumbarton Road
Telephone: 0141 959 9150
Same for Hand Pharmacy Partick
510, Dumbarton Road
Telephone: 0141 334 2268
The Libre is not available for prescription in NHS Highland at present. They are building a business case with a view to making a local formulary submission. No timescale available.
Awaiting contact from service manager
A patient has said they are now funded (unverified)
Information via a patient – ‘North Lanarkshire will be funded just going through the funding aspect before it’s on prescription.’
#FreestyleLibre is not currently available on prescription in NHS Lothian. A submission will be made to our local formulary committee and a statement will be issued once a decision is made. We cannot confirm any timescale at present.
Buying sensors yourself?
Ian Brown at Colinton Pharmacy in Edinburgh will order and sell sensors for £35 plus £5 fee per order. They have the forms to sign for VAT exemption available.
Telephone: 0131 441 2352
Fleming Pharmacy are selling at £42
131 Liberton Brae
Telephone: 0131 658 1274
The clinical team have drafted a planned approach for how they will take this forward with a paper due to be presented to their senior management team before Christmas which will allow them to make a decision and plan for a phased pilot early in January.
8th November 2017 – Patient reported ‘We were told that they expect to be able to give this on prescription within 4-6 weeks, it is already available to prescribe but the paperwork element is further behind.’
10th November via a patient – The consultant told me he had ‘good news’ for me. There had been a meeting of the Managed Clinical Network yesterday and the libre would be funded. He said Ninewells are collating names of people at the moment and would be in contact once they knew it was going ahead.
He said the GP would need to prescribe but to hold off contacting them yet as they will not have received the go-ahead yet.
More news as we get it….
1 patient confirmed full-time Libre funding today (still 10th Nov)